My name is Kristi, and I’m a 46 year old mother of 2 girls and a wife to a man I’ve been with since we were 15 years old. I was 44 when I was diagnosed coldly in an ER room by a doctor who simply said, “I’m sorry, you’re 100% riddled with tumors.” Diagnosed de novo (stage 4 at diagnosis never having had early stage), with metastatic breast cancer that was in my bones neck to knees and my liver was covered. The only breast cancer that kills, I found out. I was given 30 days at most to live.
I never call myself a survivor…even though I live with terminal cancer, living as well as I can with this disease, I prefer to call myself a Metavivor, thriving with MBC as long as I possibly can! Dying does not bring me down every day. Living each day brings me up! I am one of the fortunate ones that chemotherapy has helped. Going from tumor markers in the 40,000’s to them now being 5, 19 and 38 is miraculous! This enables me to have a better quality of life, but won’t save my life or put me in remission. I’m lucky to be here, and I’m thankful for every day I get!
My one wish is that people understand my disease. I am not stage 4 because of progression from lack of early detection or proper treatment. It doesn’t work that way. It’s a mutation kf cells, that cannot be predicted or stopped, by mammograms or self exams. Fact is, 30% of early stagers who think they are cured, will end up just like me. I am not trying to frighten anyone, but to bring awareness of the only breast cancer that kills. No one dies from early stage bc. It isn’t deadly when contained to the breast. Metastasis to major organs is what kills. I am not saying don’t get a mammogram. Don’t misunderstand me. I just want people to know that doesn’t keep metastasis from happening.
My Metaversary is Christmas Day, 2014, and each day I hope for a longer life and for better treatments and research. We get an average of 33 months with MBC…not very long. We get 2-5% research from big BC organizations for the only deadly BC. This is why 113 of my sisters and brothers continue to die each day. We are the elephant in the giant pink room. And we are standing up, and intend to get the research we need to live! Please help us, the dying, the forgotten, amongst a sea of pink survivors…help the sisters, mothers, daughters, friends live a longer life! I want us all to live a very long time! So do our families and friends. Please be aware of MBC for me and the many that die each day!!!